This post is to all of you who think I am ignoring/avoiding/hiding from you, etc. I'm really not trying to ignore anyone. I am ill. Very ill. It's official...I have holes in my brain!! We're not 100% sure what is wrong with me. I've had many tests done and have many more to go. We have ruled out MS and cancer. YAY! We were thrilled and relieved that we won't have to deal with that. However, my MRI apparently shows areas in my brain that have restricted blood flow. As many of you know, I have frequent migraines. I'm usually able to get rid of the headaches with caffeine and Ibuprofen but the migraines have become more frequent, meaning daily, and intense. A couple months ago I had one hit me at work. It came on very fast and I ended up in the ER... a place we have come to know very well and hate very much! The doctor there called it an A-typical migraine and gave me some fun drugs and sent me home. Then the fun stuff started to happen. I have a terrible memory.... just ask my kids! Well, all of a sudden, I was forgetting huge chunks of time. And then, I was having brief blackouts and eventually had a fainting spell where I was unconscious for several minutes. That has now happened twice. Then to make things more exciting, someone would be talking to me and I wouldn't be able to understand what they were saying.
So.... my neurologist thinks I'm either having mini-strokes or small seizures. Our family doctor and the ER doctors that we're growing to know and appreciate, are all leaning towards seizures due to the frequency and characteristics of my episodes. I am on anti-seizure medication which I have to gradually increase every four days until I am at my full dose. Every time I take an increased dose it makes me very sick. However, the headaches are getting fewer and farther apart and they've become more managable.
I have not shared this with many people. I HATE feeling weak and I don't like people feeling sorry for me. However, I decided to share it today because my husband is dealing with a lot. He's basically doing everything and it's beginning to wear on him a little. He needs support and relief.
I can't drive, I get worn out very quickly, I get sick a lot, etc. It's been rough on him. He rarely complains and he's been amazing.
That's my story for now. If I don't seem to be talking to you as much or have not returned phone calls or emails, it's not because I don't love you! It's just because I'm either afraid of sounding like an idiot or I just haven't had the energy.
I have faith we'll figure this out. We've had some amazing help from the bishop. We just now need the support of our friends. I don't want a bunch of people feeling sorry for me, though! I'm not dying! I'll be up and running again soon...kicking butts and taking names! I promise! I was even out weeding my flower beds this morning so I'm getting back on my feet.